By Herman Tavani
Created from Eighteen Chapters Contributed by way of specialists within the Fields Of Biology, desktop technological know-how, info expertise, legislations, And Philosophy, Ethics, Computing, And Genomics offers teachers With a versatile source For Undergraduate And Graduate classes In a thrilling New box Of utilized Ethics: Computational Genomics. The Chapters Are prepared In a fashion That Takes The Reader From A dialogue Of Conceptual Frameworks And Methodological views, together with moral idea, To An In-Depth research Of arguable concerns concerning privateness And Confidentiality, info Consent, And highbrow estate. the amount Concludes With a few Predictions concerning the way forward for Computational Genomics, together with The function That Nanotechnology Will most probably Play As Biotechnologies and knowledge applied sciences proceed To Converge.
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Extra info for Ethics, Computing, and Genomics
We already noted some controversies surrounding the ownership of personal genetic data in connection with our discussion of issues involving the first ELSI program area, concerned with privacy and fairness. Other questions involving property rights that arise in the deCODE case have to do with the ownership of 30As we will see in Chapter 10, normative privacy protection does not extend, at least not explicitly, to personal information once it is part of information in the aggregate. 31The conditions required for “valid informed consent” are examined in detail in Chapter 10.
6, pp. 526–533. Collins, Francis S. (2004). html. Accessed 12/5/2004. Dickson, David (1995). “Open Access to Sequenced Data Will Boost Hunt for Breast Cancer Gene,” Nature, Vol. 328, November, p. 425. ELSI Research Program. National Human Genome Research Institute. gov. Accessed 12/5/2004. Goodman, Kenneth W. (1996). “Ethics, Genomics, and Information Retrieval,” Computers in Biology and Medicine, Vol. 26, No. 3, pp. 223–229. Goodman, Kenneth W. (1998). ” In K. W. Goodman, ed. Ethics, Computing, and Medicine: Informatics and the Transformation of Healthcare.
12. 25 26 Chapter 1 Ethics at the Intersection of Computing and Genomics Juengst, Eric (2004). “Face Facts: Why Human Genetics Will Always Provoke Bioethics,” Journal of Law, Medicine, and Ethics, Vol. 32. Marturano, Antonio (2003). “Molecular Biologists as Hackers of Human Data: Rethinking IPR for Bioinformatics Research,” Journal of Information, Communication, and Ethics in Society, Vol. 1, No. 4, pp. 207–215. Marturano, Antonio and Ruth Chadwick (2004). “The Role of Computing is Driving New Genetics’ Public Policy,” Ethics and Information Technology, Vol.